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What about dying of a disease?

When our loved ones are dying of a disease, it feels comforting to share and read stories of others following that particular journey into death.

butterfly, green I am Dying of a Disease

Something is not working right in our bodies.

We know it because we feel pain. We know it because we have seen our doctors. They gave us a diagnosis. We have received various treatments. We know it because our bodies are getting weaker instead of stronger.

We are dying. Dying with a disease in our bodies.

It feels scary. As if someone scary has moved into our home. Not even into the guest room. Or the basement. No, right into our living room. Permanently. Won't go away. Always reminding us of their presence.

We feel powerless. Out of control. Helpless. In the face of such a permanent visitor. Right inside out bodies. Such a silent visitor. A destructive visitor. A painful visitor. An unwelcome visitor.

The plans we made are changed. We won't have the time to enjoy our hard earned retirement. We won't be able to watch our children grow up. We won't be able to finish the degree we so passionately worked for.

The dreams we had will remain unlived. We won't hold the first grandchild in our own arms. We won't write the book we already wrote in our head. We won't see the African desert bloom.

Instead we get to live with an unwelcome visitor day and night. One that will accompany us till the moment we take our last breath. One that will most likely be the cause of our death.

How do we make peace with this unwelcome visitor? How do spend our last months, weeks and days in peace with this unwelcome visitor?

All very good questions.

What if making peace with the fact that we are dying of a disease is important? What if it is important so that we can have a good dying? So we can go home at peace with ourselves? With our loved ones? And with our bodies who let this stranger in?


I am available as an inspirational speaker
about all aspects of death
including the luminous side of dying
for both US and international events.
Click here to find out more about my talks
and click here to contact me
.




butterfly, grass My Loved One is Dying of a Disease

We don't want you to go so soon. We don't want to loose you to this silent stranger. Who just moved in with you. Without asking for permission. Without even paying rent.

We feel angry at this unwelcome stranger. Get out of my loved ones body! Who asked you to just move in and wreak havoc? Who asked you to take over my loved one's body and destroy it?

We feel powerless about this ruthless stranger. We feel at a loss. We feel scared.

How do we let you go?

How do we let you go into the arms of this silent stranger? This dying of a disease? Into the arms of death. How do we do that?

We don't want to loose you so soon. So soon.


Book: "How We Die: Reflections on Life's Final Chapter" by Sherwin Nuland

If you want a really good book on the medical side of dying, I highly recommend Sherwin Nuland's "How We Die: Reflections on Life's Final Chapter".

Nuland, a retired doctor, first describes in lay person's terms, how people who have come down with diseases like AIDS, Alzheimers, cancer etc, actually die. What happens in our bodies that leads to them shutting down.

In the second part of his book he takes a critical look at Western medicine and its approach to dying. He then offers his take on how to best serve those of us who are approaching death.

A both worthwhile and informative read.



Dying of a Disease Has Several Names:

I have chosen a few of the more common ways to die of a disease for more detailed descriptions, personal stories and the opportunity to add your own story.

For this website I am less concerned with the medical facts, and more interested in the stories. The stories of loved ones dying. The stories of what it feels like to loose someone to cancer. To dementia. To congestive heart failure. What does it feel like?

Lung Cancer Death:
We can't breathe right. It feels like there is not enough air for us to breathe. The vital air we all need to live. To survive. Lung cancer death can feel like someone took the wind out of our sails. Click here to read and share stories about dying of Lung Cancer.

Brain Cancer Death:
Our mind is being affected by cancer. Our brain. It helps us think. It helps us feel. It helps us make choices. It helps us be in the world. Find our way around. And brain cancer death is taking that away from us. Click here to read and share stories about dying of Brain Cancer.

Liver Cancer Death:
Our bodies need to make sure that our blood stays clean. That is why we have a liver. To continuously cleanse our blood. When we have cancer of the liver, our bodies cannot do that anymore. Click here to read and share stories about dying of Liver Cancer.

Breast Cancer Death:
We are dying from a disease in our breasts. From breast cancer death. The most nurturing parts of our bodies. The most comforting parts of our bodies. The softest. Besides our loving hearts. And now they are killing us. Click here to read and share stories about dying of Breast Cancer

Death and Dementia:
What strange travels. Travels into the workings of our minds. Slow travels into dementia and death. We can remember our childhood in detail. Every detail. The years after that get a bit fuzzy. But don't ask us what we did 15 minutes ago. Or what we had for lunch. Click here to read and share stories about dying of Dementia

Congestive Heart Failure Death:
Our legs and ankles start swelling up. What are these balloons doing where my feet used to be? Our bellies can swell up. Feel full of water. We just don't feel hungry with all that water in our bellies. Click here to read and share stories about dying of Congestive Heart Failure

Alzheimers Death:
How do we talk about Alzheimers death? About a disease taking away our dignity. Taking away our accomplishments and skills. Reducing us to paranoid and fearsome remnants of our former selves. Leaving us lonely and alone because we cannot recognize our loved ones anymore. Even our lifelong wives or husbands. Click here to read and share stories about dying of Alzheimer's

Death from Emphysema:
Our lungs aren't doing so well. We cannot breathe right. No matter how deep we try to breathe. When death from emphysema finally releases us from that chore - what a relief. Even if we are not quite ready to go. Yet. Click here to read and share stories about dying of Emphesyma


Will You Tell Your Story?
Feel free to share your stories of a loved one dying of a disease. Sharing can lighten the load. Click here to add your story.




butterfly, brown, white





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